Valorie Stone: May 2008

Well, we just visited Kansas City today (Valorie, Georgia and I -Maya) for a doctor visit. (although these particular pictures are from other visits) She has had this particular cough that we think she got during the fluctuating weather that we have been experiencing over these last weeks. On Friday (16th) we had increased Valories' treatments from 2 times a day to then 3 times, however that didn't seem to change anything. The good part to all of this is that her lungs have remained 'clear'. The nurse and doctor both agreed that they didn't hear any crackling in her lungs which they said most likely means that the treatments she is having done on a daily basis is keeping the mucus from attaching to the lung walls. - Of course we would like to make sure that Jesus gets the Glory in this most of all. Although we are thankful for the medications that she is able to benefit from. We would like to ask you all to please pray for Valorie and her complete healing and strength.

To give you an idea of what she has to go through I will include here:
Morning treatment (approx 1 hour after breakfast)
#1 Albuterol (Mask)
#2 Tobramycin (Mask)This is a antibiotic that 'disinfects the lungs'.
#3 Pulmozyme (Mask) This is a medication that helps the mucus -which is normally very thick for Cystic Fibrosis patients- to be easier to pass.(liquefy)

During these 3 masks treatments she also does her vest treatments (simultaneously).
11 Hz for 20 minutes
13 Hz for 20 minutes
16 Hz for 20 minutes
That concludes her first treatment of the day

Afternoon treatment (approx 2-4pm)
#1 Albuterol (Mask)
#2 Hypertonic Saline (Mask) This is one of the more natural medications. It mainly consists of more salt- this medication causes her to cough up the mucus more-
During these 3 masks treatments she also does her vest treatments (simultaneously).
11 Hz for 20 minutes
13 Hz for 20 minutes
16 Hz for 20 minutes
That concludes her second treatment of the day

Evening treatment(Approx. 8pm)
#1 Albuterol (Mask)
#2 Tobramycin (Mask)
The vest is also done at this time (as mentioned above)
11 Hz for 20 minutes
13 Hz for 20 minutes
16 Hz for 20 minutes
That concludes her third treatment of the day

But then during our visit today it was said that she (Valorie) should have a Mask Treatment of Pulmozyme (which doesn't include any 'shaking' as Valorie calls it- of the vest) right around 10pm so that she can have the treatment in her lungs as long as possible during the night hours.

This picture is when we went to Kansas City Children's Mercy on to sing Christmas Carols on December 18 (which happened to fall on Valories birthday). There have been several people say how much they liked it when we sang for them.