Tuesday- March 24th Valorie, Georgia and I (Maya) went to Kansas City, MO. Childrens' Hospital. Our 3.5 hour trip went well, and we got to her appointment with 15 minutes to spare. First of all she got weighed and she has gained 1.30 lbs over these last 3 months, then she has also grown 1 inch. Which is really good for her. Her lungs are clear. Marci- one of the Respirtory therapest was happy to announce that Valorie has set a ' New personal record' in her PFT's. She went to Radiology to take x-rays of her lungs and then on to the Labratory. I was a bit surprised that she actually was screeming at the nurse- She was so paranoid of the idea of the needle in her arm. SHe did calm down however when she was promised 'gummy bears' as a prize. I am really releaved that all went well. Valorie was quite the trooper and little 'copycat' Georgia followed suit.
Eating in the cafeteria is the 'high light' of the visit. It's amazing how every 3 months its all the same...
Here Valorie is showing one of the stickers she got as a prize.
Tuesday- March 24th Valorie, Georgia and I (Maya) went to Kansas City, MO. Childrens' Hospital. Our 3.5 hour trip went well, and we got to her appointment with 15 minutes to spare. First of all she got weighed and she has gained 1.30 lbs over these last 3 months, then she has also grown 1 inch. Which is really good for her. Her lungs are clear. Marci- one of the Respirtory therapest was happy to announce that Valorie has set a ' New personal record' in her PFT's. She went to Radiology to take x-rays of her lungs and then on to the Labratory. I was a bit surprised that she actually was screeming at the nurse- She was so paranoid of the idea of the needle in her arm. SHe did calm down however when she was promised 'gummy bears' as a prize. I am really releaved that all went well. Valorie was quite the trooper and little 'copycat' Georgia followed suit.
Eating in the cafeteria is the 'high light' of the visit. It's amazing how every 3 months its all the same...
Here Valorie is showing one of the stickers she got as a prize.
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